Taking a Long Weekend

Having had a bad week trying to live independently Derek took a stress dose again on Saturday.  His symptoms have finally started to ease.

It is Queens Birthday weekend which means Monday is a public holiday, so we have taken Friday and Tuesday and we are pulling all the old shelving and desk out of our office, set up 14 years ago for short time computer use to make it a good office for working from home for Derek.

We want to paint, and put a new set of shelves and a better desk in.  What would have taken us 2 days a year ago we are planning as a 5 day job.  The room is 5mts squared.  A small space.

Pre-Addison’s

Day 1 – Strip out room of all furnishing, clean, paint.  Work non stop from 8 am until first coat finished.
Day 2 – Repaint, fit new shelving and desk and re-set office.

Post Addison’s

Day 1
We removed all the books from the book case and piled them in another room.  That is, I did most of the carrying and Derek organised them into piles (sorted a few books).  We had my youngest son and is friend carry out the old furniture.  Derek did not have the energy to take it out.
Day 2
We emptied the rest of the office.  Derek dismantled the old desk (lifted the desk top off and undid a few screws with an electric drill) and put it outside the office door.  I washed the walls down, then we started painting.  Derek managed the cutting in around the window, door and skirting. This only took an hour as it is such a small place. He was getting very tired and needed a break.
Day 3
We did the second coat.  We worked for an hour in the morning.   Derek cutting in again  and me painting.  Derek then took a rest.  After lunch I painted the window frame, door frame and skirting.  Derek painted the scotia.
Day 4
Derek reinstalled the bars of one side of the office and installed the bars for the new shelving.  A total of 9 bars, 7 screws a bar (63 screws).  After installing the bars, Derek left it to me to install the wooden shelving, and screw them into place.  He helped with the basic placement of 4 shelves. (assisted with lifting)  He then had to rest.  This is why it takes so long now.  1 hour and he is needing to sit down.
In the afternoon I got the shelves up from the garage, Derek managed to cut  3 shelves to length, I then carried them up stairs to the house, installed them, screwed them into place, and worked till 8 pm re-stacking them with books etc.  He couldn’t do any of it.
Acknowledgement today:  He could never work in a physical job, he is thankful that his job requires him to sit at his desk all day as it means he can maintain full time work at this point.

Day 5
We had our eldest son come round to help install the new desk shelving  as we needed to carry it up stairs and Derek wasn’t capable.  My son and I then carried down 2 cupboards that are going into storage, and carried up the couch that is going in the family room.  All this time all Derek could do was unscrew some metal strips of some wood, with great effort.  My son and I then carried all the old desk etc down stairs.  By this time Derek could not do anything but sit and watch.

The three of us went out for lunch afterwards, and Derek just sat there, obviously very tired.

Two years ago we did the full master bedroom, removing wall lining, removing wardrobe, insulating, relining, building a new wardrobe from scratch.  The insulation, wall lining and gib stopping all took 1 day.  Not possible now.

At 2.00pm  he is laying down in bed as he has no energy left.  Our concern is, is he going to be able to go to work tomorrow?

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3 thoughts on “Taking a Long Weekend

  1. Pingback: Road Trip, Ready? or Not | Living with Addison's Disease

  2. With Addison’s you can sometimes only live actively for one hour at a time. And then it can take you down for days, fatigued beyond belief. I’ve had this disease for over 10 years now.

    • Thanks Lynn, yes, that is what Derek and I are both discovering. It is very hard for someone who was extremely physically active to suddenly find they can’t do things they used to do easily, and that they now have to “plan” things more carefully.
      Unfortunately this is the case for many illnesses that are chronic. I have friends who are in similar situations, with different illnesses, and it can take years to adjust to a different pace. Unlike “old age” that creeps up on you and you wake up one day to realise you are no longer 20, this hit him in a matter of a week.

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