Have you ever tried doing a jigsaw without the picture? You can put small groups of pieces together based on similar colour/shape/patterns, you can even put the edge together. But you end up with these small groups of pieces all over the place, but you can’t get them to make a clear picture.
You keep twisting and turning the pieces around and trying to fit them in different areas and in different ways, but they just won’t line up nicely. You think you have the right two groups together, then someone looks over your shoulder and tells you, no, that can’t go there because that piece doesn’t work. You end up with what appears to be something, but all together, make nothing.
That is what it is like with Derek. We have all the pieces of the puzzle. We have put them into small shapes, but we just can’t make the small shapes fit the big picture.
We always seem to be missing something!
Finally someone has come and put a group into the middle, that we left to the side. Suddenly it all fits!
Derek’s Addison’s is “under control” or at least as much as it will be. He takes extra medication when needed. His BP is reasonably stable most days. He is learning to cope with the extreme fatigue he suffers at times.
But that didn’t explain the bad headaches, the lack of cognitive skills which make him tired, the inability some days to do basic math when he has a Math’s and Computer science degree.
Recently I did a post called “It’s all in his Head” in which we were told that there “could” be a brain injury. Today we had it confirmed.
He had a simple neurological test. At the end of it, the Dr that was testing him said he had to go to see a Neurologist, as it was above his pay grade.
He failed the test!
The Dr deals with all types of Head Injury rehabilitation, but is not a Neurologist. He has pinpointed the damage to the Frontal Lobe somewhere. Now we have to find out where.
We also now have to “hurry up and wait” for testing to see how extensive the damage is, and put a stick in the sand (actually this one will be in cement as it won’t move) so in a couple of years time we can see if there is any improvement. It is not likely, but we also don’t want there to be any deterioration.
You think if you are told you have brain damage you would worry, but this puts all the pieces of the puzzle together so well. All the little groups are now sitting nicely in line with the brain, and the puzzle is starting to look like the whole picture.
It was with great relief that, as we walked out of the Dr’s office, we both laughed and said “You failed, Yay”.